Sitting up a little bit.
Would you like to see our living space? As messy as it is, it tells a story and if there's one reason alone I became a news reporter - it's to tell stories!
The bed with music playing on our tablet. I found the most wonderful Catholic songs including words of John Paul II put to music! It's this wacky autotune I just happened to stumble upon. His words are put to a popular pop song, "Dynamite" - it's basically his voice on this synthesizer and it's from 1979 when he was talking to college students. In one part, the crowd chants "We love you" then he says back "Perhaps I love you more"! I then found it on the web and it's got video of him actually giving the speech and the kids cheering but I decided to let you search it yourself if you are interested. Anyway, I'm addicted to it and have listened to it like five times.
Our area for dumping things daily.
Getting stuff ready for the day - pump, phone, water.
Blurry picture of all the oxygen it took to spend the night with Ellie Tuesday night. That does not include the giant tanks we used for the car ride.
Also pictured is our trash. Not much of interest unless you are the person that sent us a care package full of love or the one that sent us a Target giftcard for retail therapy. :)
Snack bag we take with us each day.
Jeff had these books on a table near Ellie's bed and the surgeon we've known all this time (not the heart surgeon) shared she was Catholic and her kids go to Catholic school. We had such a nice talk! There are more Catholics up here than you would ever guess!
The weather outside is chilly but the hospital is really toasty, we are quite surprised. We've always been here in the summer and absolutely froze. I have to say I much prefer this. Not only do I have layers of thermal underneath to keep me warm, but I have to give the hospital credit for blasting heat all around! Much more pleasant than being cold indoors.
Dinner at the house was another hit - spaghetti and bread and salad. We are so grateful.
I'm hoping to get to pet the Golden Retriever that's been strolling around here every day, I keep missing her.
Ellie is about to start eating a TON of milk. I could not believe how much she got approved for tomorrow. She was on "volume restrictions" since September so we had to fortify it with the calorie enhancer. Now they are giving me the chance to give her 900 mls a day (vs 670 she gets now). This is really really alot for a 9 month baby and a pumping mom when the baby does not eat any food by mouth! So, I'm up for it - we'll see what my physiology thinks about it! Prayers please! I'd really love for it to work out but at the very least I'll give her what I'm able and we'll go from there.
I'm off to say goodnight to her and start collecting beads for this trip - I've not done that yet and can't wait to pick out the heart surgery one!
