Sunday, August 6, 2017

Medical update

As I mentioned back in May we had three concerns this summer with Ellie's medical issues. 

The first issue was ruling out sleep apnea.  Well, after 3 attempts at home due to faulty equipment and then a tenacious Ellie pulling the tube out of her nose - we got the results we'd hoped for!  Ellie is a healthy night breather!  All good!  Here she is getting ready for bed.  The fact she made it through all 3 nights with only minor complaining is a testimony to how great of a sleeper she is!  Although - for memory sake...I don't want to forget Jeff and I climbing in her bed after she was asleep at 9:30 to try to get the nasal canula in her nose.  That was the one thing she would not let us do before sleep. So, one of us straddled her and one of us shone a flashlight in her face.  We'd abruptly freeze and hide the light whenever she moved. We came out sweating each night - we traded jobs back and forth from one night to the next.  I believe Jeff was the final victor on the last night when it worked!  

All zipped up so she can't mess with any of it!

We made it as fun as we could!

Then we were off to the hospital for annual bloodwork.  I went to a different hospital this time that normally doesn't see pediatrics - but I'm always trying to think "outside the box".  And lucky for me - there was a phlebotomist there that used to work at Egleston in their lab!!!!!  God is good!  So we chatted in the lobby (without Ellie there) and I pre-registered and by the time I brought Ellie in the next day - there were three people there in the lab to greet us!  It went SUPER well - she started to cry just a little but the nurse distracted her, I held her in my lap and sang songs and the phlebotomist got the job done!  And good results there too - all normal.

Here I am filing out comment cards on everyone that helped us!  My handy clipboard that a nurse gave to me one day in 2012 during our first admission when I had papers scattered everywhere in the hospital room.  A loving gesture - I treasure my clipboard.