Happy lovely month of November!
I'll start by sharing that Ellie's swallow test went GRRRRREAT! She swallowed 5 good times with three different cups each so we got lots of good data on the x-ray! It is a video study so we watched her little skeleton and this white thick liquid mixed in with her water (called barium) shoots down her throat like flashes of light!! Just in time for Halloween!!!! Sorry, I don't have a picture of that for you :).
Anyway, I found one lady in town that was familiar with the test and had done them on children before. (we wanted to save ourselves a trip to Atlanta) She was a wonderful, knowledgeable person and the whole expereince was fantastic. The kids had to come with me and starting from the check-in all the way to the waiting area outside radiation, staff was giving them candy and even set them up in front of a t.v. with PBS on just for them! Ellie got a teddy bear for being a patient and the guy gave Julia one too! God was really with us and the whole thing was smooth. Everyone in the room was celebrating and cheering with each swallow! So now she's all clear to receive any and all therapy she needs to eat/drink effeciently! The timing/place is up to God - we've done all the work we can do!
On to a fun night trick-or-treating!
Here we have: A Waffle House server, an astronaut, Ellie in a cute shirt and a Rainbow!
Ellie didn't have a costume per se, but her Mommy was dressed as her heart surgeon! Ellie was happy when I told her the surgery was complete and she was all better!!!
Back to the house in time to hand out candy! The kids enjoyed seeing people come to the door! I was in the middle of getting Ellie in the bath when she crawled away from me to see the action!
Looking at the candy we were handing out!
We'll see if we can get Ellie to practice swallowing any of this candy. We may just have to do it for her ourselves. The things we do for love of our girl.
