Hello Ellie friends!
We have something HUGE to share! There are three things we're trying to patiently wait for with regards to Ellie's health. One is that she would no longer need oxygen at night. Two is the weaning of the medicines she's one. And three is of course learning to eat orally.
SO...one happened! I'll dangle it until below this picture so you and Ellie can say "I wonder what it is?!"
Ellie no longer needs oxygen at night!!! This is huge, wonderful news for our girl! Thanks to some shenanigans she was getting into pulling her tubing out way too often, her doctors agreed to let us do a trial sleep study here at the house. Her numbers were really good so she is freeeeeeeeee!!!
We still have to keep her little toe plugged up to a machine to measure how she's doing but she's so much happier without something stuck in her nose all night!
We celebrated the occasion by giving her a tortilla chip!!!
She loved licking it! Yes, we basically gave our baby salt to eat.
She licked two chips until there was no more salt! Hey, we'll take whatever! Just like the oxygen, it will one day happen!