I admit to wanting things to move quickly with Ellie now - we've waited so long for her to be better. But today proved it's enough to just be thankful she's doing well and not be hasty with her medical plan.
Bottom line is, she's doing great - her tests all looked good. The best news is that we officially are weaning some of the medicines! So we start with two (of 6) medicines today and after a month or so we'll go on to another medicine. Then at the end of a four month period we'll go back to Atlanta and the final weaning will be the oxygen at night. It turns out that's the last thing they want to take from her therapy.
The drugs that are weaning today are: #1 the really expensive drug we had to sign liability papers for and we have to quarter the pill and dissolve it to put it in her tube. #2 is the dieuretic that makes her lips so dry! It's getting cut in half, yay!
She still does have a little leaking of a valve in her heart that may never be an issue but it will be something to watch. But it's nothing compared to what she's survived her little life.
"Where we goin' Mom?"
It's lunch time Ellie - we've got to stick with tradition girl! We've eaten Moe's by the hospital I don't know how many times now!
Ellie helps the technician with her echo today.
I love my Daddy.
Time to go home now!
Now this is the big change - we were going to wait until she was off oxygen to move her big 02 machine into her room but I was so excited about the possibility we went ahead and did it when we got home! Here is her spot with her bed and machines moved. Stay tuned for pictures of her in her room!
Goodnight Ellie. Glad you had a good check up girl.
