Surgery it is

Well, our girl is taking too long to get better!  It seems the best tool for her stubborn case of pulmonary hypertension is to close the hole in her heart.

So we're scheduling open heart surgery within the next few weeks!  We can't believe it - all this time waiting and wondering about when her heart surgery would be and now it's coming into the picture.

She didn't look good enough to wait, the longer you wait the more it takes to bounce back from this level of high pressure on the right side of her heart.  So closing the hole in her heart is most likely what is needed for her heart and lungs to play well together again.  It will just be a delicate operation and recovery period but she should do just fine.

So that is the plan!  She is in GREAT hands (God's and the doctors') and we're excited about helping our girl be as strong and as well as she can be.

Driving in the dark, early this morning.

 The "wake up" look.

 Radiology confirmed her pressures are still the same.

HOME...Xavier took some pictures and captured my break from holding the phone when we got home.  The kids were happy to see us and were quite easy on us if I am brave enough to say that. 

If you are interested, here is the description we left with today.  We do our best to understand what is going on and to explain it to others, but this shows you the level of complexity we're dealing with and how we're ever so grateful for the hard working doctors, surgeons and nurses that are guiding us through this.  
Jesus, we place our trust in you!

I just might have to change the name of this blog when she gets her heart fixed!  But she'll still be "holy" so I'll just let people think I can't spell.