Long Day

The following picture means lots of things.

1. Your child's medicine port from her feeding tube popped open in the middle of the night, spilling appx. 8 oz of milk in her bed.
2. Your child is an excellent sleeper who does not seemed to be bothered by being soaked.
3. It is going to be a busy laundry day.

I think Ellie knows something we don't.  Since this happens more often than we'd like (even happened once in the hospital), I think Ellie is on to something.  Maybe this is her beauty secret - milk baths.  It seems to be working!

After a real bath (taking along a portable oxygen tank), the nurse cleaned her entire crib and gave her a change of clothes - good as new.

Nothing like golf in Hawaii time zone to get your kids bathed, fed, prayer time and on the couch together.  Xavier posed for this picture with Ellie then... 

said he wanted to know what it was like to be a a baby and look at Mommy. 

 Ellie then played with his ear - he hardly noticed.

And Jacob wanted to hold her before bed time.

We had a fire drill at the house today with firemen that came and taught us some things about escaping and storing Ellie's oxygen tanks. Long day indeed!