We got to be the first family to meet with the doctors this morning!
Night was uneventful, thank God. She's still heavily sedated but things are going to move in the direction of letting her wake up today and possibly start breathing on her own.
The news about her "pulmonary hypertension" is that the surgery worked to bring that under control, praise God! Her heart and lungs both seem to be tolerating the new dynamics well.
But Ellie, because she is Ellie, will always have some form of underlying Pulmary Vascular Disease (poor transportation between lungs and heart). BUT the goal we are all optimistically moving toward is that she can live a full, normal life without symptoms, medications or hospitalizations. Closing the hole in her heart, continuing to give her lungs time to settle down, getting fluid off the lungs (with medicines) and giving her the support of oxygen for a little longer (couple months maybe?) will get her towards that normal life.
We are on our way to that goal and have faith that it will happen. Like always it will just take time and it's all out of our hands.
We're hoping to hold her today! Oh, and our nurse is Faustina today, we've had her before and she's awesome!
